Autism, Inclusion, and Diversity: Go Beyond Being an Ally

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It’s OK to be an ally. But it’s hard to do.

Because it’s hard to define.

In America and across the world, we’ve seen a surge in allyship for and with Black Americans in the face of racially-tinged injustices, both recently inflamed and those long-ongoing and overdue for change.

Many of us have stood up and out and declared ourselves allies.

But how do I go from “being” an ally to “taking action?” 

If it’s not obvious, I haven’t lived the Black experience — just the autistic one. And this isn’t me saying “hey, autistic people need your allyship too – over here!” 

But being an ally and doing what allies do — it is not a zero sum game. It benefits all people, groups, and people groups who can benefit from your influence, reputation, and advocacy – both neurotypical and neurodiverse.

Where can you start?

Learn. Don’t lean solely on us to teach! Do the work. Read. Find resources. Don’t just hear – listen. And, while you mean well, don’t use proximity as a replacement. Just because you have “that one autistic acquaintance” or have autistic children doesn’t quite replace the need to gain perspective on other person or group’s experience, perspective, and even history.

Speak up. Notice I didn’t say “speak,” because we don’t need people to speak for us, but rather in support of us. We don’t always have “the conch” of speaking, of opinion, or influence. But if you do, use that privilege. I’m one of the more vocal autistic people you’ll meet — unless I feel like I’m too different from the group. And that’s not just an autistic thing. Invite our opinion. Revisit our ideas. Make it easy for us to volunteer thought, especially when it goes against the collective grain.

Engage. From an autistic standpoint, our needs for inclusivity differ. For example, I might balk at someone’s well-intentioned-but-ill-advised attempt to shoehorn me into a presentation or project because “I’ll bring something different.” Allyship isn’t about knowing what’s best for someone, it’s engaging people thoughtfully, knowing that our needs are on our terms, not necessarily yours. Sometimes we’re good! Sometimes we are not. It’s OK to read the room, to ask, to let us share how you can help — or sometimes understanding where you can’t.

This isn’t just for autistic people. This is for your black co-workers. Your Hispanic acquaintances. Your gay neighbors. Those with disabilities. People.

Go beyond just being an ally. Go do. 

 

The Beautiful Changes

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Of the stanzas of poetry I have read, forgotten, and re-remembered, there are few.

This one, from Richard Wilbur’s most notable verse, stands out today:

the beautiful changes / In such kind ways
I often cringe at change, as is the predilection of autism and my experience. It is far more brace than embrace.
But many things have changed since I last wrote. The time away put distance to my eyes—and despite my physical nearsightedness, I’m a farsighted soul, and the steps away sharped and focused things both outward and inward.
Here are three changes that came into view.
Fatherhood is a changing endeavor. Now with three kiddos, I at last embraced that I’m less in control of the routines. It is OK. Where I more often found comfort in control of the minutia, I had to reframe my autistic experience to find peace in the larger parts of the map.

“Sleep? This might not happen at this time, but it will happen at night.”

“Breakfast? Ugh, it’s late, but at least it’s happening.”

Even the good things are stressful. Can I confess a thing? I stopped all my blog work for the last four weeks and it vaporized my stress and magnified my peace of mind. 
How?
I enjoy creation, but the stress of delivering for and on a time was more impactful on my autistic psyche than I thought. In a way, this very blog is its own stressor.
Obligations are taxing, and I’m in a higher tax bracket than I thought. But now I know.
My autistic experience is comparatively easy. Since the murder of George Floyd, I’ve had a bit of a reckoning, a sobering one:
“What about the black autistic experience?” 
My perception changed for the better, where I realized more clearly that I still benefit from some privilege being a generic white dude, despite being patently autistic.
I don’t want to leave that change as is, and I’m more earnestly exploring ways to be a better ally, and a better one for people of color, especially on the neurodiverse spectrum. While I might suffer a bit from a bias that kicks in once people interact with me, I can’t imagine it kicking in as soon as people see or hear me.
And that needs to change.
The Life Autistic will change, too. It already has. There are plenty of topics yet to explore. Challenges to confront. Causes to support. Cadences to adjust.
But from here, perhaps it’s time to brace less and embrace more these beautiful changes, in such kind ways.

The Life Autistic: Say This One Thing to STOP THE PANIC

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If you’d like to know how we autistic people think, first, let’s explain what we think.

For me, at the beginning of each day, deep in my subconscious, on a normal day, I’m thinking:

Here is how my day is going to go.

The meetings, the tasks, when the kids wake up, what I’ll have for breakfast/lunch.

I take comfort knowing that this is how my day will go.

Welcome to The Life Autistic, where our comfort is in predictability.

But our discomfort? Well…

Since I take some extreme solace in my day’s order, anything that could jeopardize that order really freaks me out. It just does.

I wish it weren’t the case, but even innocent questions like “When are you off?” or “What all do you have going on today?” or “How long do you think you’ll be in this meeting?” just send these tremors through me.

Like I fear my order will be wrecked, and the nice, cozy routine is about to be altered, shaking my foundation.

SO.

If you want to STOP THE PANIC.

It’s easy.

Start with WHY.

Just start with why!

My family has known me for a while, so they’ve gotten accustomed to it.

“Hey Hunter, since we may be having an uninvited guest show up this afternoon, were you planning on heading to The Cheese Shop this afternoon?”

“Hey Hunter, since Mo’s not feeling too well, what time will you be off today?”

“Hey, something came up over at Dad’s and I might need help – how many more meetings do you have left today?”

Folks, this helps us so much.

And frankly, it helps EVERYONE.

Start with why, stop the panic.