Don’t Assume, Do Specify – Breakfast with Autism

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When my mom orders a dozen of something through a drive-thru, she’ll say “a dozen [whatevers] . . . TWELVE.” 

That’s all because of one order a long while ago, when my parents ordered a dozen biscuits from a Hardee’s. The cashier paused for a second too long, then asked:

“How many is that?” 

We all laugh. Then I remember.

People kinda have to do similar with me. 

Just the other day, Mrs. H2 asked for

  1. two slices of toast
  2. with homemade jam
  3. that we just got as a gift

Ok, that’s easy. So I

  1. toasted two slices of bread
  2. applied the homemade jam
  3. that we got as a gift

I bring it over. She asks: did you butter this?

Let’s look over items 1, 2, and 3 again.

Toast. Jam. Specifically, the gifted jam. There’s no butter.

“No, I didn’t butter it?”

My best (also breakfast-related mishap) was when I was sent to get “plain old Maple syrup” — here were my options:

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Did I pick the wrong “plain old Maple syrup?”

Of course I did.

This is why The Life Autistic is just hard. There are so many assumed, unspoken specifics we just miss. 

We can try. It’s a learning process, bizarre as it sounds. But in the meantime:

Don’t assume; do specify!

We’re working on this, and it’s ok for y’all to be specific, spelling things out, and making sure you’re coming across as unambiguous. It’ll help!

 

The Next Decade in Autism

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I came across a ranking of someone’s best albums of the decade and realized “Wow, decades are long, and there’s no way I remember all of this.”

It’s the frame with which I’m going into these new Roaring Twenties: If I can barely recall the events of the last ten years, I’m probably not going to predict the next ten years any better.

Ten years ago I’d have guessed I’d be in management, living in a modest home, likely sans kiddos, and writing fiction books.

End of decade: I’m in data (which would SHOCK my math-averse younger self), with two lovely gals and a third kiddo en route, in a home I’ve come to love, and not writing fiction at all (unless you count my wild rural satire ventures).

Guessing and predicting are fools errands — but there’s a better way to play the long game. 

What helped me most the last decade was growth. Growing in skills, understanding, kindness, advocacy, introspection, and transparency. The challenges also grew, but I felt I grew in ways to meet them better.

This next decade, I’m hopeful that The Life Autistic will get better. Not just mine, but those of others.

Not many years ago, an autism diagnosis was considered a death sentence. A grim judgment. A daunting challenge.

I remember a random church visit, meeting a mom who introduced her son, worryingly adding that he had “Asperger’s syndrome.” He must have been five. I could just tell it was at the forefront of her mind, like she needed that out in the open to justify and help explain whatever behaviors he might demonstrate.

I wanted to talk to her, reassure her somehow, assuage that lingering fear that she aired so openly. I didn’t. And I wonder what became of that boy, who seemed nothing but curious and focused and perfectly fine. 

There’s still a long way to go, but kids with autism today have it much better. There’s “awareness” now, so at least it’s in the aether. Organizations offer support. The ripples of empathy have emanated further into the pond of understanding. We’re getting there. 

It’d be awesome for the rest of us—the ones well cloaked, adapted and masked to the rest of the world—to enter and exit this next decade supported, understood, and appreciated even better.

Where our need to decouple isn’t seen as aloof.

Where we can use a big word without being deemed snooty.

Where our occasional directness won’t erase goodwill or be seen as rude.

Where our sensory needs and preferences aren’t onerous to others or detrimental to us.

Where we can stim, flex, and warp in and our of normal and be welcomed back.

Where our difference goes beyond tolerated to celebrated.

Where we can be us, only more so. 

Here’s to where we end up by 2030.

 

 

The Autistic Holiday Survival Guide

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Ever read a survival guide from someone who didn’t survive?

Exactly. That’s why I waited.

The holiday season is tough on people, and it feels that much tougher on The Life Autistic. 

But I made it without anything or anyone blowing up, and I hope you did too. In fact, Mrs. H2 noted that it was one of our least stressful Christmases ever. What a gift.

Here’s what worked for me (and us) this season.

Don’t overcommit. This year we didn’t travel, didn’t promise to see too many different family members, and kept our two family visits (a record low) pretty short and sweet. It was amazing. Anytime we try to make too many visits to too many people to keep them happy, it’s almost a surefire way to make me unhappy. Social fatigue sucks – it’s just better to say no until you can say ‘yes’ with your best self.

Aim small. Secret Santas, big ticket items, no Christmas Cards, pre-arranged deals, no big holiday meals — doing a “smaller number of things” was a major stress reducer this holiday. I was glad to get maybe a half-dozen gifts, if only because I didn’t feel pressured to procure a multitude of things in return.

Stay ahead of the chaos. We opened gifts slowly enough to where I could trash the wrapping paper, stash the bows, and pretty much sweep up all the holiday residue the moment it was created. Ahhhhh. 

Steer away from stressors. Know what stresses me out? Wrapping presents? Know what Amazon sells? Pre-wrapped presents. Shortness of time is a stressor, and while it added up to an extra $50 — at most — it probably bought me back hours upon hours of time. WORTH IT.

Fight for peace, then enjoy it. It is indeed poignant to grasp and reflect on the ‘peace on Earth, good will toward men’ and the true meaning of Christmas, but I did something else that sealed the deal for me. I was aggressive enough to keep our den clean after Christmas, so I decided to dump out a box of blocks and play with Mo for a while. It was a perfect little moment, one unencumbered by late-breaking events, wreckage to clean, or obligations to meet. Sometimes peace is hard-fought and hard-won, but rarely enjoyed with the same vigor by which it was gained. This time, I enjoyed it.