The Life Autistic: You Can’t Really be Autistic, because . . .

Screen Shot 2018-09-14 at 2.46.35 PM.png

Hunter, you can’t really be autistic. 

You moved out.

You have a decent job.

You actually got married — and you married up!

People laugh at your jokes. Ok, some of them.

You actually do alright in social situations.

You seem to hold your own in conversations.

There’s those big words you use, but that’s, well, you just like books.

You talk. A lot.

You at least have an idea of empathizing.

You’re, I guess you could say ‘almost’ normal?

Folks, I’ve had close to 20 years since I found out I was autistic.  And I’ve known I was different long before that.

Time. Experience. Practice. Mistakes. Correction.

There are aspects of who I am, who we are, that won’t change.

I’ve not gotten less autistic.

I’ve just had time to work long and hard on adapting, adjusting, keeping up appearances, functioning.

Advertisement

The Life Autistic: WHO THE $@#% MOVED MY CHEESE?!

Screen Shot 2018-08-07 at 12.45.37 PM.png

I forget where I was that day, but I’d been out of the house, something typically productive for a 15-year-old, like work.

As I settled back down in my room, I went to put my wallet, watch, and my other effects back in their spots.

Then I noticed something. Many somethings. They were off.

This . . . would end poorly.


If you know me, you know I’m not the cleanest person, but I am one of the tidier, more organized folks you’ll meet.

My nightstand, office desk, and other surfaces are arranged just so. 

It’s not neatness; it’s obsessive compulsive behavior.

I almost wish it were less so! I’d like to be able to leave my bed unmade or have dishes in the sink for more than a minute. But I can’t.

It’s a visceral reaction, one that (to me) seems borne of a need to declutter the things I see so that I’m not being overwhelmed with my own internal clutter than I don’t see. 

So when you’re wondering “Why is he doing dishes during this event at their house?” or “This guy is really obsessed with picking up after every single toy right away” — it’s not because I think y’all are dirty; I just have to declutter space to function. 


Back in my room, my pens had been misaligned. My watches completely shuffled. My change cup was emptied, its contents placed in piles across my dresser. Like a surgeon rearranging one’s organs and fitting them back into a body, my room had been dismembered and stitched into a pale imitation of how had everything.

I heard my siblings’ impish chuckles outside my door, and — well, I might have lost my cool. My brother tells the story better, adding much more violent, beating-someone-over-the-head-with-a-plastic-blue-chair color commentary — I don’t recall the reactions, but I definitely remember the irrational outburst.

In the end, it’s just stuff. 

I tell my normal self that “stuff can be rearranged.”

But my true self, the autistic one, doesn’t see it that way. Out of place is the wrong place, and it’s what makes our world melt.

The Life Autistic: One Word We HATE Being Called

184917411-612x612.jpg

Imagine you’re a horse.

A horse with a mission: “Run as fast as you can around this track three times.”

And off you start: saddle, blinders, gate, whistle – go.

The best horses run; they gallop with single-mind, pounding heart, focused and intentional.

But that focus isn’t always innate — that’s why they wear blinders. To keep their attention on the task at hand, to eliminate distractions, detractions from that mission, that task.

Now what if you’re next to this horse in the race and he jerks his body into you, slamming into your leg? Or maybe he veers right into you without noticing, shoving you off course?

Of course, you blame the horse, right? He should have been paying attention. He should have been more aware of his surroundings.

No.

Now imagine you’re autistic.

Whether you give it or get it, sometimes you have a mission. It’s mundane. You, being normal, don’t understand why it’s so important to put away a pile of socks — but it IS. 

Your focus narrows, your blinders are slipped aside your eyes, and off you work.

You don’t stop. You keep going. You’re not making the decision to ignore people or things. They’re not getting your attention. You’re barreling through people without seeing them as obstacles — you’re just not seeing them.

This is why people call us a thing, something that speaks to output and ignores the input.

Inconsiderate.

Don’t call us that. We hate it.

Being ‘inconsiderate’ implies too much maliciousness, willful self-absorption, and frankly, that gives us too much credit. We’re not some haughty, off-putting villains.

We’re autistic. We’re focused. We have blinders. They’re just there. 

We’re not excusing the output. We’re explaining the input. 

We get that it can cause problems. Trust me, if I could yank the blinders off at will — I would.

Don’t blame the horse.

Perhaps reconsider what it is to be inconsiderate.