The Life Autistic: One Word We HATE Being Called

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Imagine you’re a horse.

A horse with a mission: “Run as fast as you can around this track three times.”

And off you start: saddle, blinders, gate, whistle – go.

The best horses run; they gallop with single-mind, pounding heart, focused and intentional.

But that focus isn’t always innate — that’s why they wear blinders. To keep their attention on the task at hand, to eliminate distractions, detractions from that mission, that task.

Now what if you’re next to this horse in the race and he jerks his body into you, slamming into your leg? Or maybe he veers right into you without noticing, shoving you off course?

Of course, you blame the horse, right? He should have been paying attention. He should have been more aware of his surroundings.

No.

Now imagine you’re autistic.

Whether you give it or get it, sometimes you have a mission. It’s mundane. You, being normal, don’t understand why it’s so important to put away a pile of socks — but it IS. 

Your focus narrows, your blinders are slipped aside your eyes, and off you work.

You don’t stop. You keep going. You’re not making the decision to ignore people or things. They’re not getting your attention. You’re barreling through people without seeing them as obstacles — you’re just not seeing them.

This is why people call us a thing, something that speaks to output and ignores the input.

Inconsiderate.

Don’t call us that. We hate it.

Being ‘inconsiderate’ implies too much maliciousness, willful self-absorption, and frankly, that gives us too much credit. We’re not some haughty, off-putting villains.

We’re autistic. We’re focused. We have blinders. They’re just there. 

We’re not excusing the output. We’re explaining the input. 

We get that it can cause problems. Trust me, if I could yank the blinders off at will — I would.

Don’t blame the horse.

Perhaps reconsider what it is to be inconsiderate.

 

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The Life Autistic: Things NOT to Say to Autistic People

IMG_0213.jpgSometimes the best things you can say to us are the things you choose not to say. Here’s a short list:

“Why can’t you just be normal?”

Because we’re not dishwashers and clothes dryers. It’s not a setting we can just switch to.

“You’re not really THAT autistic.”

I’m sorry that I’ve socially adapted to the point where you think my autism isn’t as prominent as you think it should be.

“I need you to grow up and get over it.”

Really? You think we’re somehow unaware of the illogic in our response to stimuli, frustrations, and otherwise outlandishly inconvenient meltdowns? Autism isn’t a maturity issue.

“You’re just using autism as an excuse for [insert something negative here].”

This is where I buy you a dictionary and educate you on the different connotations behind “reason” and “excuse.”

“Can’t you just use your autism to [do something here]?”

What are we, mutants? Autism and its perks aren’t just ‘powers’ we can trigger, sorry.

“I wish you got along with people better.”

Likewise.

The Life Autistic: I Walk Through the Uncanny Valley

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Ok, if you’re not familiar with the phrase and concept of ‘uncanny valley,’ go read up.

Back? Cool.

Being autistic is like being living in an uncanny valley.

Why?

We humans are most comfortable with humans who act like humans and robots who act like robots. Mixing the two together creates an eerie revulsion that jars our expectations and freaks us out.

And of course, how do people describe us higher-functioning autistics? Monotone. Focused. Cold. Rational. Unemotional. 

Robotic.

Instead of thinking it was always personal, or that it was my weight, acne, whatever, I should have just rationalized it as “Oh, duh, these people have a reflexive avulsion to humans with robotic tendencies!”

If only.

We’re not robots. We’re just different.

Where many would become derailed by emotion, we won’t. Where others make poor decisions based on anger, spite, and hate, we don’t. Where some bask in the warmth of others and feel the benefit of feelings, well, sometimes we can’t.

We’re no less human. I’m no less human.

I might not look you in the eye. I might flap and jitter while walking and waiting. I probably won’t get worked up about hot-button, emotional topics. And my elevated prosody isn’t your computer’s dictionary talking.

I can’t help that you’re revolted. And I also cannot pretend to be a normal human the way normal humans don’t have to pretend.

If you can, try to see beyond the uncanny valley.