Tag: autism

When Autistic Routines Bend, then Break | Going to the Mattresses with Stressors

There’s only so much I can manage. And at that point, I can only hope to bend my furthest without breaking.

Unlike everyone else on the planet, I don’t look forward to three day weekends or holidays. And it’s sad, because I genuinely enjoy what I have to look forward to — truly!

But the routine break can be backbreaking.

Lemme explain this autistic trait of routine. Routine and repetition are our R&R — we thrive on predictability, reducing the mental load in adapting, and being able to “opt in” and commit in environments that mostly remain undisturbed.

So when we hit structural changes to this routine, it’s tough sledding.

This weekend, instead of hauling off to church, we instead bought the girls their new bunk beds, grilled outdoors, disassembled beds, stored beds, assembled new ones, bought new mattresses, made up the beds, and then-whew-done.

It doesn’t sound hard. But when all of that runs counter to the rank-and-file Sunday/Monday combo, it becomes hard.

Mind you, I adapt and stretch the best I can — in my mind I chalk out the outline of the day (build beds, make beds, store beds, lift things), but as soon as something falls outside of that outline, yikes.

And that happened :/

I have to draw a line between my autism and my generally-acerbic expressions, and this weekend was more of the latter. Due to my own error, I ended up having to add some extra steps outside that chalk outline and just ended the day incensed, angry, and short-tempered.

So close, H2 — so close to accounting for everything, but just short enough to light off my fuse.

That was the story: what should have been a “yay party omg labordayvibes” weekend became a sweet memory turned sour by my own rigidity and bending just a little too far and breaking.

My advice to my autistic self?

Make that chalk outline bigger.

Give a wider berth to disruptions.

And don’t buy used mattresses.

Hope your three-day weekend went well! I’ll do better on my next one. To learn more about autism from an autistic person’s perspective, follow & subscribe to The Life Autistic here and on YouTube — or follow the more whimsical, spontaneous, and amusing content on Twitter / Instagram. Thanks!

Oh, and if you like words and videos, you’ll LOVE The Life Autistic on YouTube! New episode:

Managing Meltdowns: When Autistic Strengths meet Autistic Weaknesses

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“Hunter, this isn’t working.”

“Yeah, I’m having the same issue.”

“Same here.”

Uh oh.

This may surprise you, but I get tapped for presentations pretty regularly. I’ve gotten good at it over time, and—bizarrely—get great feedback on my presence, style, and humor for hosting over video conferences. I guess if you do something often enough, you skill up to survive.

After doing this one presentation nearly a dozen times, it’s finally gotten “natural.” This is a great feeling for us autistic people: it’s predictable, successful, engaging, and elemental.

Me being me, I plan and plan again — what could go wrong? what can go right? what if A, B, C, X, Y, Z happens? But planning is exhausting: I can’t draw a new map for each scenario, just a “general direction.”

This last Monday, this latest presentation had been going smoothly.

Had.

Until my audience came to my resource and . . . it was broken.

Yikes.

The participant chats rolled in.

My brain scrambled.

Some said they thought it worked.

Others couldn’t get it working.

I have a backup for this, I thought. But not for when it’s half working. What do we do here? How much time do I have? What about the last activity?

My inner monologue ran straight off the monorail and into meltdown territory. Mind you all, I’m on camera — LIVE — this entire time.

But, mirabile dictu, I managed to un-meltdown — how?

Masking for so long to “unfortunate expert” levels. My only public face is the ‘game face’ — so even at my worst, I’ve gotten so used to ‘telegraphing’ emotions by intent. Of course I felt rattled, but I’ve spent hours being rattled and looking placid or being something and looking like something else.

Practice “pre-framing” the Plan B as the Plan A. Things fall apart, and it’s hard to cope. I’ve a few posts I want to do about this, but mentally, I’ve had to practice these “backup plan” scenarios. The key challenge is thinking about that as “the plan all along” and convincing myself that this was the design.

Rent space ahead. I couldn’t dissolve my anxiety internally, but I managed to “act” my way through it — knowing that I’d be able to exhale and process this within a few minutes. I rented that time in advance to will myself along until I could bail off camera and bleed the tension out.

At the debrief, I had my joke ready:

“I’m glad I’ve grown out my hair, because I have plenty left to spare after pulling it out after my session!”

They said I recovered extremely well and that I’m “such a natural” presenter.

And that’s The Life Autistic in a nutshell: natural, unnaturally. 

Not all of the stories are successes. But I’m glad this one was. To learn more about autism from an autistic person’s perspective, follow & subscribe to The Life Autistic here and on YouTube — or follow the more whimsical, spontaneous, and amusing content on Twitter / Instagram. Thanks!

Where Empathy in Autism Runs Deepest

My daughter has become a bit of a budding photographer, taking a knack to staging, shooting, and recording on her little digital camera.

It’s an adorable and sweet thing to watch as she catches these candids and slices of life; with this being a non-smartphone camera, it’s more observational and less “selfie-focused” (guilty).

What gets me are the videos. She’ll narrate and create these “shaky-cam” montages that hone in on goings-on in the family, beginning with the phrase “Hi, this is me, Madeline.” Already audience-aware — and if you’re following The Life Autistic on YouTube, you’ll see what I’m talking about. 😊

But as with all things digital, she finally had “a moment.”

Inevitably, she discovered that she harnessed both the power create and destroy. After a few too many clicks and menus, she mistakenly deleted a video. It wrecked her poor little heart.

While Mrs. H2 and I assured her that she had the video backed up, Mo remained bereft of consolation.

“But it’s not on my camera anymore,” she cried. “It’s gone and I wanted to watch it on my camera.”

In the moment I was probably too autistically factual and dismissive. It’s on my computer, I thought. It’s not gone. But as I spied her curled up on the cozy chair, sobbing, my heart took a different turn.

Leaning into my “strong-but-gentle dad” mode, I picked her up, cradled all of her nearly 4-foot frame (she’s a tall five year old!), then sat back down with her.

We both cried.

I’m not often as responsively empathetic to where I can both acknowledge and feel things so intently. But I found where those converge strongest in me:

When the sadness is unique.

I’ve been sad before over deleting things. Losing things that I can’t recover. Where I won’t have them in the way I used to enjoy them. Where others looked at me and didn’t understand. Where it wasn’t “normal” to be so upset over something that small.

So in that moment, as my arms wrapped around her, her new sadness profound – I remembered my specific sadnesses of old as well. She didn’t notice the small tear or two, but we spent that 20-second moment in a specifically empathetic embrace.

We autistic folks might have our challenges with empathy. Except when it’s perhaps at its most challenging and maybe misunderstood – it then runs its very deepest.

I’ve learned that my heart responds to misunderstood sadnesses; I’m grateful to be a uniquely empathetic autistic person. To learn more about autism from an autistic person’s perspective, follow & subscribe to The Life Autistic here and on YouTube — or follow the more whimsical, spontaneous, and amusing content on Twitter / Instagram. Thanks!